Saturday, June 21, 2008

Long time no speak

Sorry it's been so long since the last post, the mundanaties of getting on with life rarely warrant a post. Here's a catchup though. Ciara's going from strength to strength and has tonnes of energy, more than her poor mum and dad can cope with. Her hair is slowly beginning to grow back, but at this point it's very thin on the ground. Hopefully the rest of the follicles will kick in soon.



We're still struggling to get food into Ciara. Her appetite has been shot recently and her weight is on the way down again. Not nearly as drastic as before, she just needs a little more padding. Check ups are still at once a month, and she's still on the Vitamin A capsules two weeks on, two weeks off. The bloody stuff doesn't half make her face sore and she looks pretty ill when it's in full flow. While on a recent and very stressful shopping expedition, a shop assistant said to me (full Essex accent) "'as she got measles?". The poor girl picked the wrong moment to say that to me and I shot back "No! She has cancer!". Slam! I saw the blood drain from her face and felt a tincy bit sorry for her so had to turn on the chatty-charm to back-track, I hope I didn't ruin her day too much.


Ciara had her birthday party last week. Had a fabulous day and it was lovely to have everyone round the house. The weather held out pretty much so most of the time we were in the garden. She had a whale of a time and looked the business. Much as she did the weekend before at her aunties wedding, also a fabulous day. After those busy weekends, this one is very quiet. She's asleep on the sofa, Finn is asleep upstairs and I'm finally getting round to some non-Work related computer work - uploading photos, writing blog posts, re-arranging my iTunes for the imminent arrival of my previously-lost iPod.

3 comments:

Anonymous said...

Hi guys,
Fiona here,thinkin of you.Great to see Ciara lookin so well, cant wait to c her will b home in October tell her big Hi from me xx

Anonymous said...

wow...what a lovely little girl!! She is so lucky also to have such wonderful supportive parents. I spent a period working with the play team in St. johns and can only imagine how tough this time is. Will be thinking of you all esp Ciara, and please keep posting as I love hearing how she is doing

Carolyn Wing said...

Sending you prayers from Michigan. Hugs and prayers. Carolyn Wing grandma to Laura stage IV neuroblastoma carepages.com page name LauraVDB