Just a quick note to say that we're all back home now! We were able to escape last Friday and have slowly begun to get some kind of normality back in to our lives. I can't thank St John's Ward and Ronald McDonald House enough for the support they gave us during the 105 days of our stay, having to look after ourselves will come as a shock. Also, the Tucker family sends a huge thanks for all the words of support, presents and letters we've received. In particular, thanks for all the Christmas presents Ciara received (where are we going to put them!).
Ciara's doing well and is in very good form, getting home was a great tonic for her. She's been eating well and that and the NG feed have got her back on her feet and looking fantastic. She still has a big belly from the VOD and we don't really know how long that's going to take to get sorted out. The MIBG results showed that there were some neuroblastoma cells dotted around, and in particular there were some near the kidney. We don't know if these are active or progressing and we probably won't ever know but for the time being at least, we're not seeing anything from the other results indicating neuroblastoma activity. Next week I think, Ciara will have another CT scan concentrating on the Kidney area to see if they can map a route for radiotherapy.
Today, Ciara wants to write her letter to Santa and put up the Christmas decorations. Only eleven months too early!