Back Home
Just a quick note to say that we're all back home now! We were able to escape last Friday and have slowly begun to get some kind of normality back in to our lives. I can't thank St John's Ward and Ronald McDonald House enough for the support they gave us during the 105 days of our stay, having to look after ourselves will come as a shock. Also, the Tucker family sends a huge thanks for all the words of support, presents and letters we've received. In particular, thanks for all the Christmas presents Ciara received (where are we going to put them!).
Ciara's doing well and is in very good form, getting home was a great tonic for her. She's been eating well and that and the NG feed have got her back on her feet and looking fantastic. She still has a big belly from the VOD and we don't really know how long that's going to take to get sorted out. The MIBG results showed that there were some neuroblastoma cells dotted around, and in particular there were some near the kidney. We don't know if these are active or progressing and we probably won't ever know but for the time being at least, we're not seeing anything from the other results indicating neuroblastoma activity. Next week I think, Ciara will have another CT scan concentrating on the Kidney area to see if they can map a route for radiotherapy.
Today, Ciara wants to write her letter to Santa and put up the Christmas decorations. Only eleven months too early!
6 comments:
Tears of JOY - JOY - JOY
We have all so long been waiting for this sort of news. You deserve loads and loads of happiness from now on.
absolutely fantastic news - getting home will definitely do wonders for her, and finally enable you guys to relax a bit too. ((hugs)) pie xx
I'm absolutely delighted to hear that you are all home! Thank you for all the posts you've written... it must have been very difficult to find the time and energy... you all truly are an inspiration!
Especially your gorgeous little girl Ciara... for someone to go through what she has gone through at such a young age really puts all our insignificant worries in perspective... and those beautiful big blue eyes and sparkling smile make my heart melt every time!
Wishing you, Yvonne, Ciara and baby Finn all the happiness in the world... you definitely deserve it!
Oh that is such fantastic news. We are so so happy for you all, finally things are on the up, you deserve it so much. I don't know where you all got your strength from but you are all amazing and deserve nothing but happiness from now on.
Love and hugs to all xxxx
So pleased you are all back home, and Finn for the first time! He will probably find it rather quiet. Ciara is such a trooper and "I wish it could be Christmas every day" for her. You may tire of it come April but I'm sure we can all agree that Ciara deserves it. All our love to all of you, from Wingrave x x x
absolutely chuffed for the Tucker family!!! really wishing you the best of times and some real home comforts for you all, will call when things settle down a bit, proper 'happy new year'!! xx amber, si & tiaan xx
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