Sleeping it off
A quiet few days are ahead of us while Ciara's body fights the VOD. She's been sleeping a lot, and while awake, she's pleading for a drink. She can't have more than 100ml of water orally over a 24 hour period while we try and reduce the fluid build up. This is very tough, and now and then all we can hear from her is a quiet "water....water...." like some kind of Foreign Legionnaire. But she gets a "special treat" of half an ice cube every few hours! Wow!
She's not looking too well either. The skin complaint, while clearing up, has left her with scabs all over her bald head. She's gaunt too, with big dark patches under her eyes. Around her right eye looks like she's been in a fight, looking bruised and bloodied. She's very thin as you would expect and she's wobbly on her feet in the rare moments she wants to walk about. Not much cheer in her either. In fact, if you look up the word "grumpy", or "cantankerous", you may find a picture of Ciara.
The other day, before she came down with VOD, she was allowed out for a while. We took her to Phoenix Park to see the deer. It was a glorious autumn evening, bright and fresh...and Ciara wanted nothing to do with it. Admittedly it was creeping past "fresh" and in to the realms of "bloody cold", which may have had something to do with her desire to get back to her room. She allowed no pictures, but I broke the rules...
2 comments:
Hi, My name is Stephen, my daughter, Emma, was diagnosed with neuroblastoma back in November 2006, you have a link on your blog to our site (Baby Emma) We went through transplant back in April and always worried about VOD but we where lucky in the end. Just thought I would let you know that I look at the blog all the time to check for updates and wish you all the best in the future. Hope the VOD clears soon
Thank you Stephen for such encouraging words.
From Ciara's Grandmother.
I too have been following Emma's progress.
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