Mad as a bag of kittens
Day -5, fourth day in, and she's still hyper. However, the sedatives aren't making her so beligerant and yesterday and today weren't so bad. She's still a serious handful though and totally exhausting! Ciara and I stayed up till 10 last night and that managed to tire her out enough to sleep through to 8am. She's started wearing nappies at night now as her poor little bladder can't cope with the gallons of fluids be pumped through her. She's not at all impressed but at least it means we don't have to run around in the dead of the night changing sheets.
Her weight has been fluctuating rapidly. Last night she was at 15.2, this morning back down to 14.7, and this evening back up to 15.2. Her weight has to be vary carefuly monitored as rapid gain could mean she has VOD. The fact that it went down again probaly meant she was just retaining some water and nothing to worry about.
Really strict infection control is not yet in place as she's not yet neutrapenic. . We're not wearing aprons or washing Big Ted everyday but we will start tomorrow so we can get into the habit. I've stopped walking around with keys and coins in my pocket as they are big germ carriers and we Azowipe everthing coming in to the room. Azowiping a newspaper probably wouldn't do it much good but the covers of books seem to hold out okay. An Azowipe, by the way, is the almost corrosive disinfectant wipes used in the hospital. Just thinking about them gives you clean thoughts.
We're getting an early night tonight. I've been in the room everynight as Yvonne, in her condition, wouldn't be able to get out of the camp bed in time for bed pan emergencies. As such I'm a bit of a grouch and appologies to anyone who happens to be on the receiving end. The lack of sleep is a small price to pay though as Yvonne will be trapped with the psyco child while I go to work for the morning. Tomorrow afternoon we will see how my laptop stands up to being Azowiped. Something IBM probably didn't cater for in their durability tests.
2 comments:
Thanks for the updates, it's pretty amazing you are still remembering! So proud of the way you are dealing with this all, you're all amazing. Hugs and positive thoughts coming your way in abundance xxx
Hi. Pie's dad here. I have been watching progress. To say my heart goes out to you would be understating it more than a bit, though I've never met Ciara.
I am in Australia at the moment, enjoying a West Australian spring; it's lovely, with wild flowers out everywhere. We went to a wildlife park the other day, where you could see kangaroos and other animals close enough (and tame enough) to stroke. Great place to bring Ciara when she's fit to travel.
I know the treatment's at a crucial stage right now, but don't forget you have friends and sympathisers all over the world who are thinking of you and wishing the best.
With every good wish,
Robert
Post a Comment